We were discharged last night with all our IV medications and supplies, and we had a successful night. This time, instead of having a pump (or those horrible gravity fed IV bags) we have infusion balls. Many other CF moms have mentioned how easy they are to use, and they really are. There is no priming, adjusting dosage, or air bubbles to prime out. It still is exhausting waking up multiple times during the night to change medications, flush the IV, and disconnect his G-tube. We also have 4 breathing treatments during the day. It is tiring but well worth being at home.
We were able to jog this morning, although he had very bad reflux before and during it. I feel frustrated that it isn't any better, or perhaps worse since we were admitted but I am hoping it will be resolved soon.