We are all so happy to have him home. Those 8 days in the hospital seemed to last so long. We were able to celebrate his 9th birthday at home, which was a huge blessing. It was a cold day. It was cute watching them play with Legos on a blanket in front of the fireplace.
It hasn't been exactly a walk in the park doing IV treatment at home. The medication runs for 2 hours twice a day. It has been getting easier to hook him up. It is a process, but it is becoming second nature. But, because it does run for two hours, and it has to be twelve hours apart, the time schedule is difficult. I have to get up in the middle of the night to start it, which is challenging, but doable. It is tiring.
They took a blood sample last Thursday to test the levels of the antifungal medication. The doctor said if those levels are acceptable, then he can switch him to an oral equivalent.
He is also on a high dose of oral steroids. The only side effect that we have seen is a dramatic increase in his appetite. For the first time in his life, that I can remember, he ate two hot dogs and was able to eat a whole slice of his birthday cake. In one meal. He has been experiencing some dizziness, which I believe is due to the antifungal medicine.
I'm hoping in the next day or so, the Picc line can be taken out!
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