Today Azer blew only one point higher after inhaling Albuterol. The doctor was a little disappointed with the results, as she was expecting to see a higher number after Albuterol. She thinks his lungs have a strong inflammation component and that it will take time for them to calm down. She said before gene modifiers, they would put patients on a very high dose of ibuprofen to reduce inflammation and their lung function would improve. Azer coughed out some very dark mucus that she saw, and she believes it's old mucus still coming out. She said during bronchs, they flush the lungs with saline, and tons and tons of old mucus comes out at once. She said that Trikafta is likely doing the same thing, but a little at a time, and it's coming out as if in layers. It seems difficult to get much information on whether the off and on fevers and lung infections are due to Trikafta.
So far, the doctors are undecided on whether to continue antibiotics for a third week. His appetite seemed better last night, but his GI system as still been very upset. They may start Flagyl today.
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