January 31, 2013

Clinic Visit, Doc is happy!

So, when he started his first few blows on the PFT test machine, he was blowing at mid 80's. But, thankfully, with each try, it got higher. The highest was 94% Fev1. Not the very best I was hoping for, but definitely great, for not being on antibiotics for about a month. So, hopefully we have killed off enough of the Staph to keep it from causing symptoms for a while.

They did labs again, and if his IGE level (allergy response) comes back lower, they will stop the antifungal medication, and will wean him further off the prednisone.

He lost a few pounds, but they aren't terribly concerned about it, since he's appetite has gone back to normal  since he's been on the lower dosage of prednisone.

The doctor mentioned that in her study and research, she found that CF people that are on the antibiotic, azithromycin long term have better lung function and less lung infections. She said it also prevents psuedomonas from growing a biofilm barrier. Sounds great. We just have to make sure it doesn't cause excessive lose stools. If it doesn't, he will be on it as long as she deems necessary.

So, things are looking up. Baseball will be starting soon. He has been doing great on our runs. I'm the one huffing and puffing, and he barely even coughs after 30 minutes of running. I am thankful that things are getting back to normal!

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