Well, we've had a good, long run without any need for antibiotics, or increased treatments. I knew it was coming eventually. I just didn't expect it while it's still summer.
It started two weeks ago, with a drippy, stuffy nose. After a few days, I could hear it migrating into his lungs. This past week, I could hear that deep, junky cough. The mucus has been white to clear, no I'm hoping there isn't anything too major going on in there. When I listen with the stethoscope, I can hear squeaky noises. I'd had already started increasing his treatment time. I know he has lost some weight. His appetite hasn't been great at all. Some days, he won't eat anything all day long, and then eat a very small amount for dinner. Thank God for that G-tube!
Well, I called the doctor yesterday, and he prescribed Augmentin. This time, instead of liquid, it's these gigantic pills. Their seriously huge. They looked at his previous culture, and it was just Staph and normal flora. So, I am really cracking down with treatments now. Yesterday we managed to get in 2 hours worth of Vest time. We are definitely keeping up with the running during this, as well.
I hate it when he gets sick, and I know it just by looking at his face. The paleness comes back, and he gets dark circles under his eyes. I hate seeing CF on him. It's like an entity that overtakes him... well, in my mind. It's always strange to me that, as many times as I've done this, it still overtakes my thinking. I mean, I've been through this so many, many times. Seeing him get sick, increase treatments, start extra medications, start antibiotics. It's really not a big deal. But, somewhere inside my head, I'm going, "This is a big deal, this is not good, yep ... this is a good opportunity to freak out. Yep, we are out of control here!".
Our CF appointment is next week, so hopefully with the antibiotics, the running, and endless days of breathing treatments will get it cleared up!
