May 24, 2011

Great CF Clinic!

Azer gained about a pound and he grew about 1/2 an inch! Best news of all, his PFT result was .... 91%! So, there is definite proof that all this running his helping his lungs! I was amazed at how deep of a breath he was able to take during the test. So, the proof is not only in the number, but in appearance as well.

The doctor seemed very impressed with how he looked, and recommended we continue all the exercise. We've been running 3 miles every other day, and Azer will lift 25 lbs on the arm machines in the gym.

Azer has been experiencing quite a bit of leg pain, mostly in the upper thigh to hip area, during exercise. He's fine when he's walking, but running for a while and playing baseball seems to trigger the pain. I had been giving him a lot of ibuprofen. Aleve seems to be working much better for him, as it allows him to exercise with almost no pain. Our CF doctor recommended we make an appointment with an orthopedist to rule out any problems, and make sure there are no problems that could get worse over time.

May 21, 2011

Great Strides 2011!!

Wow! I'm not sure of the exact amount right now, but I believe we raised more than $2,000!!

We actually had a team this year. It was such a great time spending time with people that care about Azer. They have been so supportive. I couldn't have asked for a better group of people. I just couldn't wrap my brain around the fact that these lovely people came out on a foggy, humid day to go walk 3 miles for Azer and for CF. Someone even came even though she couldn't actually walk with us due to a minor injury.

Azer ran next to his teacher the whole way. I'm not sure of his time, but I couldn't even keep up with him. By the time I got over the finish line, he was already chilling with her. He ran the whole entire time. That kid just amazes me.

He had fun with his team mates that came. Lol, he was so hyper before the walk. They all were, really.

I'm so thankful for this day, and for all the support. It makes me feel like I'm not alone in this daily fight with Cystic Fibrosis. I pray there is a cure for CF soon.

May 1, 2011