August 23, 2010

1st Graders

Today was the first day of school. Two 1st graders now! Reema was so excited about school all this month. She was counting down the days until school. When I walked them in today, Reema practically ran to her classroom. Azer, while not as enthused about it, was happy that his best friend was in his class, and that there was no homework today. Yeah, they are very different.

Reema turned 6 two days ago! It is that odd time of the year where both of the kiddos are the same age. It only lasts for about a month, but it's nearly impossible to explain to people that while they are both the same age, they are not actually twins.

August 7, 2010


We went to Six Flags a few days ago. I learned that Reema is completely fearless, and that Azer likes to ride the Teacup (it's not my fault, lol). Complete opposites. I managed to convince him to ride a big, wooden coaster. At the end, he said he would never ride it again. Lol.

I couldn't help but thinking on that ride that it was just like CF. It started out uncertain, what's around the corner? What is it going to be like? Then you go up, and you keep going up, as the doctors give you information, and hope. "Everything is going to be fine, we're in this together" they said. And then for that very first hospital admission and the pills added and treatments and more medicines than I knew existed, I went down, fast. I didn't know how I was going to do it. How was I going to ever look at this baby boy without crying? And then things evened out. I gradually got better. I started to think, oh ... that wasn't so bad! Look! Totally ok! And we're going up.

Then, wait ... what? The hospital again? More medications? Going down! What is this new stuff they want me to do to him now?  New treatments, something else you find out that isn't right with your kid.

It never ends. Whenever I read back through the years on this blog, I read the "up" posts, everything is great, he's gaining weight, not coughing. And then the "down" posts, he's coughing, he's throwing up, he's not gaining, not eating, IV's, X-rays. I guess you kind of learn to prepare for the downs, try to anyway. But sometimes they come when I'm not looking. Sometimes I'm afraid that a down is going to pop up when I'm not ready for it.

I guess I like carousels better than roller coasters.

August 4, 2010

Less Formula Again

Well, since Azer started the 4 cans, he was barely even eating one meal a day. He just had no appetite (no wonder with a liter of formula a day right...). There is another problem that's been occurring since we've upped the feedings. In the morning after the feedings are done, he experiences reflux more than I've ever seen. He has to drink sips of water to prevent himself from throwing up.

So, last night I decided to put him back down to three cans. And today he had three small snack-ish meals. Yay food! And no reflux in the morning. So, 3 cans = one happy kid.

Only two more weeks until school starts. I feel sad about it, after spending the whole summer having fun with them. Lots and lots and lots of swimming.