February 28, 2010

No Tobi

The doctor said, "No Tobi" ... for right now anyway. One of the nurses mentioned that the other medications that treat Pseudomonas also carry a risk of hearing loss as well. So, it seems the doctors are taking the "wait until it causes problems" approach. At least for now we don't have to wake up a full 30 minutes earlier. That Tobi really takes forever to run.

What else is new.... oh yeah.

Milkshakes, milkshakes, milkshakes, milkshakes...

Scandishakes, Scandishakes, Scandishakes, Scandishakes.

Seems like a lot to drink, but he says he's "cool" with it.

I'm "cool" with it too. He actually has a little bit of cheeks on his face. The last time I saw actual cheeks was...

Well, I just had to show that picture.

One more ... just because it's so stinkin' cute.


Froggymama said...

So glad you are home from the hospital. Froggy has nebulized Tobi 2 or 3 rounds (I forget), and we haven't noticed hearing loss, but I know adults who have. Yet another concern!

Can't wait for the new inhaled antibiotic!

I loved your last few posts, and I can totally relate to the frustration of adjusting to new meds, having life become "normal" and then again having to adjust to a new med or treatment. It is neverending. But I'm so happy to have a community of smart mamas who understand, who know what it's like LIVE CF. It's a full time job.

Sending love to you and your beautiful family! xoxo Froggymama

Lydia Russell said...

Thanks so much for your kind words. It's great to know that other CF Moms feel the same way. It really does never end... We can do it though!

Much love to Froggy and your family!