November 26, 2005

Got sick and recovered

Azer ended up catching a cold from someone last week. You could tell he wasn't feeling well at all, so we thought it would be wise to go to the pediatrician. That was like a whirlwind. They checked his oxygen levels which were at 92%, then they sent us down for a chest X-ray. When we came back up, his oxygen levels were 99-100%. That always seems to happen. They were talking about admitting him but thank God they didn't. The doctor called the CF doctor and they only prescribed oral antibiotics. He seemed to be feeling much the next day.

So NOW, he's been having chest pain when he's been eating. So, instead of Zantac, they switched him to Prevacid. I'm not sure if its helping yet. He still has a little pain, but not as much. It was scary seeing him have pain in his chest. I was thinking the worst, but apparently its nothing more than some reflux.

Anyway! Well, Reema has just been a handful these days. She cries if you don't give her some of the food from your plate. I'm trying to get her out of that, but geez, every time I sit down to eat she starts crying. So, now its come to giving her a plate of her own every time somebody in this house needs to eat. If we keep doing this, I don't know how big she's going to be next month. At least we don't have to worry about how much she eats.

She's not a petite little girly girl at all! If she sees something she wants, she just takes it. She seems to prefer blocks and trucks over her dolls. If she's pushing a truck in your direction, you had better move because your getting run down if you don't. She's like a tornado with a pink bow on top. Azer will just be sitting nicely on the floor building something, when BAM here she comes tearing everything down. Oh well, we love her anyway. We can always pick up the pieces of destruction she leaves behind her.

November 15, 2005

You know You've Been Dealing with CF too long when ...

Azer is off of the antibiotics and seems to be doing ok!

I received this from a CF parents messenging group. I thought ya'll might like to read it. Some of it is really funny.

You Know You've Been Dealing With CF Too Long When ....

- You've used puppets, toys, sung, danced, pleaded and generally made a fool out of yourself all in an effort to get your child to eat.

- You've stockpiled enough applesauce to start your own factory

- You find loose enzyme beads literally everywhere, the car, your clothes, -the ceiling (not joking)

- You count more calories than sheep

- You add salt to everything and use butter as a general cooking base even when a recipe doesn't call for it

- You panic when your child sneezes

- Your child coughs and you immediately chant "Xopenex four times a day!"

- You check websites daily for news about a cure

- Your house has more medications than the pharmacy

- You've actually found yourself explaining a medication to the pharmacist instead of the other way around

- You've considered dying all your child's clothes yellow to hide the vitamin stains

- Your medical bills are looking more and more like the national debt

-You've prayed for your child to be fat

-You have a strong urge to smack whiny parents of "normal" kids

-You've actually found yourself exclaiming angrily in the grocery store upon discovering extra-cheesy mac doesn't have more calories than regular (sadly true)

-You know what the poopie dance is, and you've done it

-You've had long involved discussions with other parents about poo

-You've started referring to everything in acronyms (CPT, PA, MRSA...)

-You're seriously considering a medical degree, cause at this point you know more than most doctors

-You've reduced a complete stranger to tears by yelling at them not to touch the baby

-You can describe the hospital's daily menu in exact detail

-Purel and Lysol are your new best friends

-You've considered life-long quarantine for your child

-You've told someone off for coughing near you or your child

-You have multiple doctors on speed dial

-You refer to CPT as your child's nightly beating

-You've bought a fancy baby scale for peace of mind

-The pediatrician sees you more often than their own staff

-You tend to refer to life AD & BD, After Diagnosis and Before Diagnosis

-You've cried over half a pound

-Your child comes with an instruction manual if you leave them with a sitter

-You've forgotten what normal is

-You find empty enzyme capsules in your pockets

-Your child wears a neb mask more easily than they do a hat

-Your child has started trying to do their own CPT

-You own every Baby Einstein video made and are eagerly awaiting more just for something different

-You've forgotten to put meds in the nebulizer and actually let it run several minutes before discovering the problem

-Your after clinic routine at home looks like a hazmat excercise