About two weeks ago, it seemed like Azer was going down hill again, the same way as has been happening all this year. He began becoming very fatigued in the morning to early afternoon, very cold, and increasingly congested. Saturday, he had a fever, and his lungs felt very full. His heart rate was high, and oxygen was low. The on call doctor said if the fever got worse to go to the ER, but he was stable through the weekend. This morning, his lungs felt so full, he could barely speak without a coughing attack. He has been coughing up a lot of mucus. It is extremely frustrating to feel like he is back in the same place as a month ago, with no answers at all. His cultures from his sinus surgery and bronchoscopy still don't show any slow growing bacteria or fungus. It was always that the bronch would be the final try to see what was really going on, and we feel stuck now. We are all hoping for relief for him and some insight.
Showing posts with label COVID-19. Show all posts
Showing posts with label COVID-19. Show all posts
August 31, 2020
July 21, 2020
Pre-Op Appointment & Covid Testing
Azer has been working on trying to gain muscle mass, to better his chances to play college baseball. It seems to be working, as his weight was the highest it's been this year.
The pre-op appointment went pretty fast. We were previously given all the instructions over the phone on when to stop eating, what medications to take etc. They went over all of this information with him again as well as reviewing all his medications. The CF doctor decided that she would like to do a bronchoscopy during the polyp surgery. It is undecided if he will need IV antibiotics after this, but they will see how he feels the day after surgery. If he does need IVs, he will stay in the hospital for a while, and then we could finish the course at home with a PICC line.
After the appointment, Azer got swabbed for COVID-19. If he is negative, he is good to go for surgery this week!
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